Archive for May, 2010
In the News: Students dedicate day to Fibromyalgia awareness
This year’s Fibromyalgia Awareness Day was celebrated at Cal State Fullerton on Saturday with an all-day event, “Make Fibromyalgia Visible.” The day included a Wellness Fair, educational seminars, walks to raise awareness and musical performances. The event was hosted by the National Fibromyalgia Association in coordination with CSUF’s Fibromyalgia Research and Education Center. The event began at 11:30 a.m. and continued until 8:00 p.m. …
A Wellness Fair with over 20 exhibits was available all day, and included health screenings, information about FM, family activities, massages and product and food samples. A few of the exhibitors present were the Aadara Yoga and Healing Arts Studio, Apex Research Institute and the Arthritis Foundation. The event also included 25 free educational seminars presented by experts on a variety of topics related to FM such as “Nutrition and Brian Function,” “Spitituality: The Wellness Connection,” “Role of the Caregiver” and “Therapeutic/Restorative Yoga.”
After the seminars, the third annual 1k and 5k “Walk(s) of FAME (Fibromyalgia Awareness Means Everything)” began. Participants walked around campus and were cheered on by friends, family and event volunteers. …
… this was one of hundreds of community walks that were organized internationally around May 15.
The walk was followed by dinner and the “Lights of Hope” celebration. During the celebration, 10 large cranberry-colored candles were lit in honor of over 10 million people in the U.S. who are affected by FM. White candles were lit to honor individuals who suffer from the illness.
This is an excerpt from a May 16 article in the Daily Titan written by Katie Rossomano. To read the full story, click here.
Add comment May 28, 2010
In the News: Her son’s music helps ease a mom’s pain
At first, doctors thought that Phyllis Talarico had suffered from a stroke.
Her eye was drooping, she felt disoriented. She was exhausted and in pain.
It took 17 doctors before the Yorba Linda woman was diagnosed with fibromyalgia, a little-understood and painful disorder that affects millions of people – mostly women – in the United States.
Nearly two decades after her diagnosis, Talarico, 64, has become a standard-bearer in the fight to raise awareness about the disorder. To that end, she asked her son, a Christian youth minister and musician, to write a song for her.
“Vigil Song,” is being recorded by R&B artist Tony Terry, who is performing with Pasquale on Saturday at a Fibromyalgia Awareness Day hosted by Cal State Fullerton.
The free event, featuring workshops, health screenings, a 5K walk and musical performances, will be held from 11:30 a.m. to 7 p.m. It will take place near the Kinesiology and Health Science Building at the campus.
Terry, a well-known musician who topped the Billboard charts several times in the 1990s, has a personal reason for recording the song. His wife, Larondra, has been battling fibromyalgia since the birth of their son in 2006.
For more information on the Fibromyalgia Awareness Day event on May 15, click here.
This is an excerpt from a May 14 article in the Orange County Register written by Jessica Terrell. To read the full story, click here.
Add comment May 14, 2010
Today is National Fibromyalgia Awareness Day!
Join the “Make Fibromyalgia Visible” movement and help us bring hope to everyone with FM. We are relying on you, our NFA friends around the world, to be the voice of fibromyalgia in your local communities. Through our combined efforts, we can shine the light on Fibromyalgia—not just in May, but in every month of the year.
Please take time today to make a difference by taking one of these simple steps.
- SEND the FM Aware Magazine link to 10 friends to help educate them about fibromyalgia.
- TELL three people you meet today that it is Fibromyalgia Awareness Day.
- SUPPORT the NFA and honor a loved one by sponsoring a “Lights of Hope” candle.
- ADD the “Make Fibromyalgia Visible” logo to your e-mail signature. It’s fast and free, and lets all your e-mail recipients know that you care. Click here to download or copy this FREE logo.
- BECOME an NFA fan on Facebook and keep up-to-date on all our latest news and information. Click here to link to our Facebook page.
- PLEDGE TO CARE and encourage others to join the NFA in its national advocacy efforts. The program consists of three pledges: the NFA’s pledge to the FM community, the family’s and friends’ pledge to someone special in their lives who suffers from fibromyalgia, and the healthcare providers’ pledge to the patient. Click here to complete the pledge. Your name is added to our virtual “We Care” pledge wall – a testimony to the far-reaching effects of Fibromyalgia.
- SHOW YOU CARE by placing one or more of our “Make Fibromyalgia Visible” products on your car or other prominent location. The NFA has three new products specifically designed for this campaign. Click here to visit the “Aparrel” and “Goodies” department of the NFA Store to see new shirts, hats, totes and mugs.
- GATHER WITH FRIENDS IN THE FM COMMUNITY – if you join in an Awareness Day event, be sure to e-mail us some pictures for our Awareness Day collage. Send to kwiley@fmaware.org.
Add comment May 12, 2010
Win a Select Comfort Mattress in Honor of Awareness Day!
Need a new mattress?
In honor of Fibromyalgia Awareness Day, Select Comfort is giving away a Queen p5 Sleep Number ® bed (valued at more than $ 2,000) in the online edition of Fibromyalgia AWARE magazine.
For your chance to win, CLICK HERE. If you’re already registered with the NFA, just look for the blinking “i” on the top of page 26 of the latest issue of Fibromyalgia AWARE to complete the online entry form. If you’re not already registered, it’s easy – and free! Just fill out the NFA registration form, then enjoy your FREE issue of Fibromyalgia AWARE – and don’t forget to go to page 26 for your chance to win a Sleep Number ® bed. Entries accepted until 8PM ET, FRIDAY, MAY 14, 2010.
Can’t attend the Awareness Day celebration hosted by the NFA and the Fibromyalgia Research and Education Center? No Problem! Select Comfort will ship the mattress to the winner’s door. The winner will be announced at The National Fibromyalgia Association’s Aware Day this Saturday, May 15th.
Add comment May 11, 2010
R&B Star Tony Terry to Perform at National Fibromyalgia Awareness Day
R&B singer Tony Terry, will perform a special concert at the National Fibromyalgia Association’s (NFA) National Fibromyalgia Awareness Day on Saturday, May 15.
Terry will perform during the “Lights of Hope” candle-lighting ceremony. Terry, whose wife Ronnie, has fibromyalgia, is the NFA’S new spokeperson. He is hoping to bring awareness of fibromyalgia by telling his own story as a caregiver, husband and father. Last November he appeared on the “Mo’nique” Show where he talked about fibromyalgia and advised others who may be caring for a loved one with chronic pain illnesses.
At the concert, Terry will also debut a new song from the National Fibromyalgia Association dedicated especially to the over 10 million people affected by fibromyalgia in the U.S. and 3-5 percent worldwide.
For more information on National Fibromyalgia Awareness Day and Terry’s upcoming performance, click here.
This is an excerpt from an event listing in the Los Angeles Wave published on Tuesday, May 4. To read the full listing, click here.
Add comment May 5, 2010
In the News: Make Fibromyalgia Visible May 12
The National Fibromyalgia Association (NFA) is encouraging organizations worldwide to make fibromyalgia visible by increasing awareness and understanding during Fibromyalgia Awareness Day on May 12. Allsup, a nationwide provider of Social Security disability representation and Medicare services is offering free posters to support the observance and provide information on the syndrome that affects an estimated five million Americans…
Allsup works with hundreds of individuals with fibromyalgia each year and appreciates the challenges they face in dealing with an often misunderstood and misdiagnosed condition. Fibromyalgia is often referred to as “invisible” because you can’t see pain. People sometimes have a difficult time believing a person with a healthy appearance and positive outlook can be experiencing profound symptoms and limitations.
This is an excerpt from a press release posted on PR Web on Monday, May 3 by Karen Hercules-Doerr and Corin Ramons. Click here to read the full story.
Add comment May 3, 2010
