August 2010

”Fibromyalgia: Beliefs and Expectations”

”Fibromyalgia: Beliefs & Expectations” was the first full-length video created by the National Fibromyalgia Association from the patient perspective. This was produced about 6 years ago, before we had any FDA approved medications for fibromyalgia, but many of the experiences described by our “patient stars” are still very relevant today. We hope you enjoy watching [...]

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NFA Makes Call to Action in Response to FDA postponement of decision to approve sodium oxybate (Xyrem) for treatment of fibromyalgia

As a participant in the FDA public hearing held on August 20 for the approval of sodium oxybate (Xyrem) for the treatment of fibromyalgia, the National Fibromyalgia Association would like to congratulate and thank the patients and physicians who also took part in the proceedings. Because of their outstanding contribution and willingness to share their [...]

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Free gift to NFA Facebook fans from “To Your Good Health Radio”

  On August 19, NFA president Lynne Matallana, was interviewed live on To Your Good Health Radio. It was the first time that the show, which has featured celebrity guests like Mariel Hemingway, Stephen Baldwin and Suzanne Sommers,  talked about fibromyalgia. “The show received the most emails and questions for this segment!” According to the show’s host, [...]

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NFA staffer, Jordan Aquino, pursues graduate degree while juggling four jobs

“Seeing such a great need and wanting to help people with chronic pain and related health issues has made all the studying and working well worth it!” – Jordan Aquino, NFA Research & Program Manager Jordan Aquino with NFA president and founder Lynne Matallana If you think that today’s youth are stereotypically lazy and self-absorbed, then [...]

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My Fibro Story by Adrienne Dellwo: “Fibromyalgia may have taken away the TV career that I loved, but it also gave me an opportunity to do something much more personally rewarding.”

  As About.com’s  “Guide” on Fibromyalgia and Chronic Fatigue Syndrome, Adrienne Dellwo is one of the top writers and bloggers on CFS and fibromyalgia, regularly bringing her readers the latest news on groundbreaking research, treatment options and tips on managing the chronic pain illnesses. We are very fortunate that Adrienne took some time out of her [...]

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NFA applauds Allsup on 75th anniversary of Social Security

  Allsup, a nationwide provider of Social Security disability representation and Medicare plan selection services, has been one of the strongest supporters of the National Fibromyalgia Association. For the past several years, Allsup has created and distributed Fibromyalgia Awareness Day posters in support of Fibromyalgia education and awareness. Allsup works with hundreds of individuals with fibromyalgia [...]

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One Year Later: National Fibromyalgia Association’s Facebook Page Reaches Another Milestone with 46,000 Fans!

  Today, the NFA’s Facebook page reached another milestone: 46,000 supporters/fans (or “Likes” as the new term used by Facebook), making it the largest page among nearly 1,000 fibromyalgia pages and groups on Facebook. “The NFA is very grateful for all of our Facebook fans who have made this page one of the few online and offline [...]

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My Fibro Story: “Despite all of my pain and daily depression, nothing makes me feel more alive than to watch my children smile!”

  My name is Norma Occhiline and I am a 32 year old woman who was diagnosed with fibromyalgia in October of 2007. I believe my fibromyalgia was brought on by stress. I never considered my body as being a living organism needing plenty of food and rest to work properly. As a younger adult I kept this sensation of [...]

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FibroBlog Monday: Some of our favorite blogs and posts

The fibromyalgia community is fortunate to have many talented writers who, despite everyday challenges of living with chronic pain and other debilitating symptoms of fibromyalgia, continue to raise awareness of this very real condition by sharing their personal and poignant stories on their blogs. The National Fibromyalgia Association launched our own FibroBlog early this year, [...]

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FM Aware magazine’s E-card contest now accepting submissions

In honor of September, Pain Awareness Month,Fibromyalgia AWAREmagazine is sponsoring an E-Card Contest with the theme “Pain Hurts Everyone”. Put your imagination to work and create a still image E-card to help spread the word about Pain Awareness Month. Winning artists and their E-card will be featured in an upcoming issue of Fibromyalgia AWARE magazine!

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