Contact
Do you have a story idea for FibroBlog or FM Aware magazine? We’d love to hear from you!
Email us at NFA@FMaware.org and include your name and contact information.
You may also contact us at:
National Fibromyalgia Association
2121 S. Towne Centre Pl., Ste. 300
Anaheim, CA 92806
Ph: 714-921-0150
Fx: 714-921-6920
I am trying to reach Dr, Patrick Wood pertaining to my fibromyalgia prescriptions. Does anyone know how to reach him? I had heard he was in River Oaks Missippi. Help
Bonnee
How can I get something like this started in PA. Every medication I am on except my asthma medicine, the insurance company has required me to try 4 to 5 other meds before what giving me what actually works. What is the process to have the same law you are trying to pass in CA and getting it in PA.
I’m John Garrett, the director of For Grace, the organization that is sponsoring AB 1826.
Unfortunately the headline for your AB 1826 blog post is incorrect. The Bill has not passed the California Senate.
We will be heard by the Senate Appropriations Committee on August 2nd. This will be a huge hurdle for us – and we’re needing letters of support from everyone in hopes of passing Appropriations and moving our Bill on to the Senate floor.
Please update your information as this misinformation is hurting our chances to pass the Senate.
Please correct and encourage your membership to send their letters of support to:
State Senator Christine Kehoe
Chair, Senate Appropriations Committee
State Capitol, Room 2206
Sacramento, CA 95814
Thank you…
Best,
John Garrett
Please tell people ) repeatedly) about LDN – Low Dose Naltrexone.
there is a ton of info in this Topic title under the Discussions tab of the facebook page for the National Fibromyalgia Association, including links for info you can print out & take to your doctor to educate him/her and get them to prescribe LDN.
We fibromites have heard people espousing everything under the sun to take our few $$$ and cure us. I myself would tell people I had tried everything except Satanism !! I had horrible side effects from just about every drug they tried. I spent more time in bed than out, with pain, fatigue and constant near migraines. I hated waking up, wishing I could be free of this body, feeling like life wasn’t worth it. But, LDN is a near-miracle! truly !!
After 1 month on the 4.5 mg dose of LDN ( after titrating up from an initial dose of 1.5mg) ~ my pain is incredibly lessened and so is my fatigue. My head is clear, free of headaches and I sleep better.
The latest Stanford study said that the average was 2-6 months on LDn before the best results were seen. So, I expect to get even better.
It has been used for many many other conditions with great success.
I had to get off narcotics before starting. I was taking them for chronic hip & sciatica pain as well as for the Fibro. It was hard but worth it. Last week, I broke my ankle on my strong side. The bad side is having to work with the crutches. But, even so, the LDN has boosted my body’s endorphin & immune systems so much that those pains can be dealt with by Aleeve ( Naproxen).
Please go read the NFA facebook page discussion topic and tell people about this. They have nothing to lose but their pain & fatigue. Until there is a cure, there is LDN !!
thanks, kat