In the News

NFA goes “LIVE” on KCAL 9 Los Angeles with “Fibro Focus”

Lynne Matallana, president and founder of the National Fibromyalgia Association, and Dr. Hernan Castro-Rueda, were in-studio guests Monday on KCAL 9 News, the Los Angeles affiliate of CBS,  to discuss fibromyalgia, its signs and its symptoms. They also talked about “Fibro Focus,” a free educational seminar on October 23 in Mission Viejo. The event will be held at 3 pm at [...]

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Aloha! New Fibromyalgia support group for adults & children forms in Hawaii

FibroBlog first featured Kristina Lum’s “My Fibro Story” in July. Kristina is the former Mrs. Hawaii 2008-2009, and was diagnosed with fibromyalgia in 2009. She had reached out to the NFA with her plans to start a fibromyalgia support group in Hawaii for both adults and children. She was also working on getting a proclamation for [...]

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NFA Makes Call to Action in Response to FDA postponement of decision to approve sodium oxybate (Xyrem) for treatment of fibromyalgia

As a participant in the FDA public hearing held on August 20 for the approval of sodium oxybate (Xyrem) for the treatment of fibromyalgia, the National Fibromyalgia Association would like to congratulate and thank the patients and physicians who also took part in the proceedings. Because of their outstanding contribution and willingness to share their [...]

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Free gift to NFA Facebook fans from “To Your Good Health Radio”

  On August 19, NFA president Lynne Matallana, was interviewed live on To Your Good Health Radio. It was the first time that the show, which has featured celebrity guests like Mariel Hemingway, Stephen Baldwin and Suzanne Sommers,  talked about fibromyalgia. “The show received the most emails and questions for this segment!” According to the show’s host, [...]

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NFA applauds Allsup on 75th anniversary of Social Security

  Allsup, a nationwide provider of Social Security disability representation and Medicare plan selection services, has been one of the strongest supporters of the National Fibromyalgia Association. For the past several years, Allsup has created and distributed Fibromyalgia Awareness Day posters in support of Fibromyalgia education and awareness. Allsup works with hundreds of individuals with fibromyalgia [...]

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In the News: Living with Fibromyalgia

  Watching her active 24-year-old daughter metamorphose from an active career woman to someone often too pained and fatigued to get out of bed in the morning was a nightmare for Pat Radtke of Eastpointe. “It was hard to believe and hard to watch,” said Radtke, mother of Sharon Waldrop of Royal Oak, founder of the Fibromyalgia [...]

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In the News: Her son’s music helps ease a mom’s pain

At first, doctors thought that Phyllis Talarico had suffered from a stroke. Her eye was drooping, she felt disoriented. She was exhausted and in pain. It took 17 doctors before the Yorba Linda woman was diagnosed with fibromyalgia, a little-understood and painful disorder that affects millions of people – mostly women – in the United [...]

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